to curate the most comprehensive freely-available disability resource database
Patients, caregivers, and professionals will use the Disability Resource Guide to better identify and utilize the resources available
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Sierra is a twin mom, rare mom, genetics enthusiast, and relentless advocate.
This is Sierra's story:
"In 2021 my son was diagnosed with Warsaw Breakage Syndrome and at the time there were less than 25 documented cases worldwide. During the short time we have been on this journey I have found that the best resources and tips have come from caregivers walking a similar journey within the rare and disability communities. The doctors, therapists, case workers, service facilitators often didn’t even know about resources I would tell them that I had found from another parent! I am a passionate believer in knowledge is power and sharing knowledge empowers us all. I have been curating this resource guide to share with families, friends, & professionals near and far to spread awareness about all of the amazing organizations and services that are out there."